Conway J, Johnson B, Edgman-Levitan S, Schlucter J, Ford D, Sodomka P, Simmons L. Partnering with Patients and Families to Design a Patient- and Family-Centered Health Care System: A Roadmap for the Future. A Work in Progress. Institute for Family-Centered Care and Institute for Healthcare Improvement; unpublished manuscript June 2006.
This paper provides background information to facilitate the development of an action plan to ensure that sustained, meaningful partnerships with patients and families are in place in hospitals and health systems; in community clinics and other ambulatory settings; in schools educating the next generation of health care professionals; in national associations; in federal, state, and community agencies; in foundations and advocacy organizations; and among payers. The paper was drafted at the request of The Robert Wood Johnson Foundation in preparation for a one-day invitational meeting convened by the Institute for Family-Centered Care and the Institute for Healthcare Improvement in June 2006.