Why Should Patients Have Input in Care Design?

Barbara Balik, RN; IHI Senior Faculty, Common Fire Healthcare Consulting

Have trouble viewing this video? Read the transcript.

Learning Objectives: At the end of this activity, you will be able to:
  • List three types of relationships between patients and providers.
  • Identify at least two consequences of leaving patients out of health care design.
  • Discuss an example of program design involving patients and families.

Description: In an ideal world, patients and families have input into the design of health care. But in the real world, doesn’t that take more time and work?

In this video, Barbara Balik, RN, IHI Senior Faculty and Principal of Common Fire Healthcare Consulting, explains why involving patients and families in health care design is better for both patients and health care systems. She offers a framework for thinking about the relationship between health care providers and patients, and gives examples of how designing health care without patients and families can lead to unnecessary costs and additional work.

Discussion Questions:

  1. What ways do you see health care providers doing things “to” or “for” patients and families?
  2. When have you seen providers doing things “with” patients? How was it different than doing things “to” or “for” patients?
  3. What do you think it means to have programs professionally and organizationally centered instead of patient-centered? Can you give an example?
  4. Why do you think it’s so rare that health systems include patients and families in program design? What stands in the way?
  5. Have you ever seen or been part of a health care design process that included patients and families? What kind of input did they give? How did it change the outcome?
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