Institute of Medicine Committee on the Ryan White CARE Act: Data for Resource Allocation, Planning, and Evaluation
Washington, DC, USA: The National Academies Press; 2004

This review of allocation fomulas for Ryan White CARE Act funds proposes several types of analyses that could be used to guide the evaluation and improvement of allocation formulas, as well as a framework for assessing quality of care provided to HIV-infected persons.

An approach to rapid scale-up: Using HIV/AIDS treatment and care as an example. World Health Organization; 2004.

This white paper, co-authored by the World Health Organization (WHO) and Institute for Healthcare Improvement (IHI), describes how health care providers in resource-poor settings (and particularly in the developing world) can apply operations research principles and collaborative improvement methodology to introduce and rapidly spread health care interventions. The authors situate their description in the context of efforts to scale up antiretroviral (ARV) treatment for AIDS and cite several examples from work in developing nations.

Mannheimer S, Friedland G, Matts J, Child C, Chesney M. The consistency of adherence to antiretroviral therapy predicts biologic outcomes for human immunodeficiency virus-infected persons in clinical trials. Clinical Infectious Diseases. 2002 Apr 15;34(8):1115-1121.

A prospective study of long-term antiretroviral adherence patterns and their impact on biologic outcomes for human immunodeficiency virus (HIV)-infected participants in 2 randomized, multicenter clinical trials. Results demonstrating that nonwhite race was associated with poorer adherence (P<.001), and older age was associated with better adherence (P<.001).

Hugen PW, Langebeek N, Burger DM, et al. Journal of Acquired Immune Deficiency Syndromes. 2002;30(3):324-334.

This study compared and combined various methods of measuring adherence and concluded that diary-corrected MEMS data gave a detailed insight into patients' adherence patterns. Patients' self-report and therapeutic drug monitoring were significantly correlated with the MEMS data, and the clinical nurse specialist may also play a role in identifying patients who are imperfectly adherent.

Institute for Healthcare Improvement
Boston, Massachusetts, USA: Institute for Healthcare Improvement in partnership with Health Resources and Services Administration and HIV/AIDS Bureau; 2002

In the past two years, over 80 US health centers, clinics, and hospitals have been working on a specific clinical or operational area to improve the care of people with HIV/AIDS disease — and have achieved significant improvements in a short time. Under the guidance of the Institute for Healthcare Improvement and a panel of national experts, team members study, test, and implement the latest knowledge available to produce rapid improvements in their organizations. This manual gathers the best of what these health centers have learned so far about improving the care of people with HIV/AIDS and related chronic illness.**There is no cost to order the training manual and it is available on CD-ROM or as a printed binder.

Mathews WC, Mar-Tang M, Ballard C, Colwell B, Abulhosn K, Noonan C, Barber RE, Wall TL. Prevalence, predictors, and outcomes of early adherence after starting or changing antiretroviral therapy. AIDS Patient Care STDs. 2002 Apr;16(4):157-172.

Structured assessment of self-reported adherence is an inexpensive and useful tool to assist clinicians in monitoring adherence.

Halloran J, Ross M, Huffman L. Training persons with HIV disease for involvement in community planning processes: Project LEAP (Learning, Empowerment, Advocacy, Participation). Journal of the Association of Nurses in AIDS Care. 1996;7(6):39-47.

To increase organizational and community planning participation by people living with HIV/AIDS disease; a pilot project testing a psycho educational intervention increased self-esteem, self-confidence, and specific knowledge for people living with HIV, along with the demystification of organizational operations and networking.

Winer M, Ray K
St. Paul, Minnesota, USA: Amherst H. Wilder Foundation; 1994

Beginning with a story considering two aspects of collaboration — what it offers and what it demands — the handbook explores the collaboration journey.

Scholtes P, Joiner B, Streibel B
Madison, Wisconsin, USA: Oriel Incorporated; 1996

This book is a great resource to help develop teams and overcome common team hurdles.

Berzon R, Lenderking W. Evaluating the outcomes of HIV disease: Focus on health status measurement. Medical Outcomes Trust Monitor. 1998;3(4).

Linking patient outcomes in HIV-specific and generic health-related quality of life measures benefits clinical monitoring, clinical trial research, and the patient.

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